Events

Online registration pricing will be available on March 15, 2022

BBAF hosts an Annual Golf Tournament, dinner and silent auction. This event is our main fundraiser and helps us support our Mission.

We hold our tournament in September or October every year. As the event approaches you will find information here, including: dates, registration forms and other important information for those who wish to donate items for the auction, participate in the golf tournament and/or attend the dinner and silent auction.

If BBAF has any other fundraisers throughout the year, you will also find current information about those here.

Mission

To create, promote and facilitate legislation which will mandate this comprehensive newborn screening for all fifty states; and

To raise funds through promotional activities and sales to support children and families affected with GA1 and other OA’s (organic acidemia metabolic disorders) through the creation of provisional support programs, including food, vitamin and emotional support efforts. With the costs of all these important areas of treatment so exorbitant, it is imperative that insurance companies supply these families with supplements and support they need to live relatively normal lives.